Monday, July 6th

Me on Monday, July 6th, while watching Let's Make a Deal
Me on Monday, July 6th, while watching Let’s Make a Deal

So, the past few days have been okay. The new dosage of prednisone isn’t that bad – just makes me a bit nervous before I have to take it, because, well, 50 mg tasted horrible. 4×10 mg is much easier than 1×50 mg. So, on Friday, I was very tired from the Methotrexate. On Saturday, I was pretty tired, but my stomach was not very unsettled, so I had a cheeseburger for dinner, it was very good. Yesterday, my family (My parents and my brother) and I went out to look for a pet to adopt. We are most likely going to adopt a dog, but we are in the beginning stages of looking at animals to adopt. We’re going to adopt either from a rescue, or the Humane Society or ASPCA, because adopting from breeders and puppy mills are just ugh – and anyway, mixed breeds are just healthier.

So, yesterday was my town’s fireworks (They don’t do it on the 4th because it’s cheaper not to) and it was enjoyable – I might’ve stood for too long talking to my cousin (and updating her about how I am doing with treatment), so my spleen & legs were a bit uncomfortable after standing around for a while – but nothing that lying around after getting home doesn’t fix. Also, I ate a bit of funnel cake. Unsure as to how wise that was, given my recent eating habits, but ohmygod it was so indulgent and crunchy. I think the prednisone at a lower dosage is trying to make me gain weight – I keep having the urge to eat salty things, which I know is bad, because it will make me swell up like a balloon. Evil prednisone. I don’t want to swell up. Last time I did, my feet turned purple. Let’s avoid that.

My Monday is going well so far. I am watching The Price is Right (it’s 11:10 AM) and I am about to take my prednisone soon. Ate some frozen organic Maple Waffles from Whole Food this morning. They were pretty good. They had little chunks of like crystallized maple scattered throughout the waffle. Yum. For lunch, I had egg and cheese on a hard roll and for dinner I had a hot dog with a pretzel bun. It was pretty good. So my Monday has gone well. It’s now 6:53 PM on Monday.

So, last night I was talking to some people and they said that I should start posting random medical facts about myself, because apparently they are interesting. So here’s some fun facts:
1. I do not remember any dreams that occur. I just fall asleep, then I wake up when my alarm goes off. No dreams are remembered. The best theory by neurologists? Well, they’ve seen a small spike in electrical activity during EEGs – it is a generalized (aka all across the brain) spike that lasts about 3 seconds, and usually occurs once a night during REM sleep. It was rather odd.
2. A frequent phrase I hear from doctors? “This is very interesting. I have only heard about this in medical journals/textbooks/medical school!” It can be entertaining. At least the doctors don’t call me a miracle like all of the nurses do – that gets a bit boring after a while.
3. My first neurologist was a very good, but very eccentric man. He loved my case because it was so odd. The guy is very eccentric – he is licensed in pediatric neurologist, adolescent psychiatry, and clinical genetics. So, his interests were varied, to say the least. Every time I would see him, he would have me do the standard neurological tests, along with some other stuff. Then he’d turn to whatever parent drove me there and say “Okay, now you do it!” He really liked to see my parents do the activities, I assume that ties into his genetics background. He was a *great* neurologist. He still practices here in NJ, but he doesn’t see patients with epilepsy, as far as I know – too much risk, and he has a kid who is like 10 years old now.

So, that’s it for now. I’ll post again on Wednesday. Not much is going to happen, so the next blog post might be a bit shorter than this one :P.

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