April 1st, 2022

Hello everyone! Long time, no see – and this is not an April Fool’s Day joke.

So, since the last time I posted stuff has happened. So, I am sure that all of you noticed that little thing called COVID, such a lovely pandemic (sarcasm) – I still haven’t gotten it (and neither has anyone I know, yay!).

With treatment, I failed the cytoxan in June 2020 and I was on another medication vacation after that – I started methotrexate injections (in the thigh, ow!) on April 28th, 2021 (after having a bone marrow biopsy the month before). I failed that a few months later and I started a clinical trial in August, 2021.

I also had some new experiences – a month into the MTX injections, my hemoglobin dropped so low that I needed to have blood transfusions (it can get rather boring being hooked up to a bag for 3-6 hours, but the nurses at the hospital are great!). Since May 2021, I have needed 8 blood transfusions – and in case any of you are interested, my blood type is A+ (go donate blood, it might end up in me, or another person who needs it!).

I am going to try to update the blog more often (hmmm… didn’t I say that last time I made a post?), but we will see how that turns out.