So, while typing the title I realized it is the 28th. It’s been five months of chemo. At least I started to show improvement last week. Woohoox! So, hopefully tomorrow goes well. Might go to the movies this weekend and see if there is anything. But other than that, things are as they were on Monday. Talk to you guys next Monday with an update on how I am doing.
Hello. So, been an interesting last few days. Currently, I feel very depressed. Very sad. We had most of the house, including the bedroom I share with my brother, packed up in bags – as we had an exterminator coming this past weekend to deal with some annoying bugs in our home. My dad decided he wanted to donate some things to charity. My mom set some bags aside for him to donate and showed him what was in each bag. He decided to donate the completely wrong bags and didn’t notice until we were unpacking the bags. He donated my baby blanket, which I have had since well, I was a baby. It brought me comfort and now it is gone.
My hiccups stopped on Saturday after I took a warm bath. Yay.
On Thursday I called the oncologist in NYC – nurse hadn’t talked to the oncologist yet as he had been in meetings all morning. The nurse called me back later that day and told me that my numbers had made an improvement that warranted me staying on the methotrexate. My hemoglobin went from 8.8 to 9.3, my neutrophils went from 330 to 740, and my red blood cells started to look a bit more number doing whatever tests they do to look at the shape and size of them – all in the span of two weeks.
So, some good things, some bad things. Talk to you on Wednesday.
Happy Wednesday!
So, the dog trainer had to cancel the appointment yesterday. Booo.
Went to the NYC oncologist today – he stated that by now, my flow cytometry should be better than it is and that he wants to switch me to a new medication – cyclosporine, in pill form, that is taken every day. I am thinking of waiting until next week to take it – as taking on a Friday might be risky in the event of side effects. So, my hiccups haven’t let up – took Lorazepam today at the onoclogist’s advice and it did not help. Boo, hiccups.
Talk to you on Monday!
So, Thursday and Friday turned out similar to the week prior. NYC oncologist wants to see me on Wednesday because he is concerned about how I am tolerating the pills. Yay. I hope it goes well on Wednesday, but yeah. I will update you guys on Wednesday with how I am doing and how things are going. Tomorrow, the dog trainer comes back to help Rebel with his biting – now he just keeps licking me. His breath is horrible.
Hello everyone! So, insurance denied my doctor’s request for an echocardiogram, stating it “isn’t medically necessary.” Yay. NYC oncologist’s office called yesterday – NYC oncologist came back from his trip and he told the nurse that if I feel like I do every Friday, I am to call the office, as he wants to see me next week whenever I can be scheduled. Yay.
I am hoping tomorrow goes well, but I have my… concerns about it. I want it to go well, but I am just worried and a bit anxious about it, which is just a bit against what I need, which sucks. I talked to my therapist today, which helped a bit.
So, talk to you guys on Monday, maybe I will have visited the NYC oncologist again next week (boo!).
Hello Everyone! It’s Monday (and Columbus Day) and I hope your weekend was better than mine. On Thursday, I vomited after taking five of the six methotrexate pills. Didn’t get a call back from the NYC oncologist until Friday – they wanted me to take the sixth pill and just the thought of that made me vomit, so my local oncologist prescribed me some Ativan. Took until around 8 PM, but I finally got the sixth pill in me. Felt like shit Saturday and Sunday. I was planning on going to New York Comic Con this weekend, but the events of Thursday ruined my plans, which sucks. So my weekend sucked, how about yours?
Here is picture of Rebel and I on Sunday. He wasn’t being bitey. He was too tired.
Talk to you on Wednesday!
Happy Wednesday! So, I saw the NYC dermatologist and the NYC oncologist today. First, we figured out what the rash is – the dermatologist believes it is my body’s allergic response to mosquito bites. Which is just odd, and sort of sucks. The oncologist likes my progress and how the hemoglobin is above 8.0 consistently. He is going to talk to my local oncologist nest week and discuss how my treatment is going and figure out if he should add another drug to help with the progression of treatment. A bone marrow biopsy is still slated to occur in December and I see NYC oncologist again in a month.
Happy Monday! So, this weekend was okay. Rash is here and a bit itchy. I went to my cardiac electrophysiologist (super fancy cardiologist) today – he says my heart sounds good, but he wants me to get an echocardiogram (heart ultrasound) in two weeks just to get an up to date one – then I see him in six months. So, on Wednesday, I go to the NYC oncologist and then I will have a good update, I hope.