Wednesday June 14th and June 21st 2017

Me on June 14th 2017 at 6:48 PM
Me on June 14th 2017 at 6:48 PM

Me on June 21st 2017 at 1:46 PM
Me on June 21st 2017 at 1:46 PM

Happy Wednesday! I hope all of you had a great last two weeks (Sorry about the blog not posting last week!).

So, some stuff has gone on. When I went to the oncologist in NYC, he and his fellow were very concerned about the weekly side effects. The fellow asked me a lot of questions about them to get specifics, blah blah blah, that kind of stuff He came back in with the doctor and he said that he wanted to try a medication vacation to see how I do without the pills. I asked that he talk to the doctor down at UVA first to get his approval and make sure it is okay and he was fine with that.

Last week I got a call from his office saying that it was approved and I can take a vacation from the pills. So, I have not taken the pills since June 1st! Yaaaaaaaaaaaaaay! Haven’t had to vomit on Thursday or Friday for almost three weeks now! I went to the local oncologist today to get my blood drawn to see how I am doing and so far, my numbers are doing okay. I see the NYC oncologist again in July, so we’ll see what he thinks then.

So, I will talk to all of you next Wednesday! I hope all of you have a great week!

Wednesday June 7th 2017

Me on June 7th 2017 at 8:54 PM
Me on June 7th 2017 at 8:54 PM

Happy Wednesday! So, not much went on over the weekend – though on Saturday, we decided to look for some ginger ale that I drink on Friday (Boylan’s), since the nearest supermarket hasn’t had any in stock the last two times we checked. First we went to a Trader Joe’s that opened in the last year – it was surprisingly very disappointing, they didn’t really have anything. On the way back, though, we spotted a place that was called something like Old World Market Grocer and Furniture. A place that sells both groceries and furniture? You *have* to stop and take a look inside. So we did just that and they had furniture and groceries – including soda from around the country – we got a six pack of bottles that looked interesting to us. So far, we have tried Cicero Beverage Co.’s Salted Caramel Root Beer – it was delicious, it wasn’t your typical root beer with a strong bit to it, it tasted more like a root beer float, which was nice.

So, other than that, I had the dentist today and I had no cavities – the dental hygienist and dentist were both shocked, given how much I have vomited in the last two years. The cleaning took over an hour. Tomorrow I get to skip the pills because I have to go into NYC on Friday to see the oncologist there – yay!

So, I will talk to all of you next week!

Wednesday May 24th and 31st 2017

Me on May 24th 2017 at 2:29 PM
Me on May 24th 2017 at 2:29 PM

Me on May 31st 2017 at 1:20 PM
Me on May 31st 2017 at 1:20 PM

Happy Wednesday! So, I thought the blog post went through, but it turns out it didn’t, so you get a two-fer today!

Not much happened the week of the 24th, so you’re in luck – you didn’t miss much!

This past week, on Saturday we took Rebel to the dog park – he loved it, when we first got there, there were not many dogs and by the time we left, there were over a dozen dogs for Rebel to have fun with. On Sunday, there was a food truck thing at the horse track, so we went. I had bacon wrapped garlic and a chicken & waffle skewer. The garlic was delicious, the chicken and waffle skewer was so-so. Like usual, my luck with the horses was crappy – I came with $20 to bet (then I added $2 in) and I left with $6.40. My dad bet on some longshots and won some money, though.

On Monday, my mom baked a few cookies because, hey, cookies are delicious. Monday was also Memorial Day, a holiday here in America. My mom has this week off, so yesterday she broke out the smoker and smoked some ribs, some macaroni and cheese, and some other stuff – all delicious. So it was a pretty eventful week! I will talk to all of you next week, but it won’t be nearly as eventful as this week.

Wednesday May 17th 2017

Me on May 17th 2017 at 3:55 PM
Me on May 17th 2017 at 3:55 PM

Happy Wednesday! So, not much going on here – Sunday was Mother’s Day, my mom requested takeout because going out to dinner on Mother’s Day is just chaotic. I went to my local oncologist today and my numbers are how they have been – so he’s happy. My next doctors visit is seeing a new dentist in the first few weeks June, then my NYC oncologist a few days after that.

Tomorrow, May 18th is the two year anniversary of the day I was told that I have Chronic NK & T-Cell LGL leukemia. Multiple dates could be considered the anniversary, though – April 7th was my first local oncologist visit, April 10th was the day he told me I probably had a malignancy of some kind, April 15th was the day he gave me the paperwork on LGL leukemia, so I suppose April 15th could be an anniversary – May 18th was the day that the diagnosis was confirmed and a treatment plan was laid out, though.

So, anyway, I will talk to all of you next week. Have a great weekend!

Wednesday, May 10th 2017

Me on Wednesday May 10th 2017 at 4:28 PM
Me on Wednesday May 10th 2017 at 4:28 PM

Happy Wednesday! So, not much going on here – hopefully nothing back going on in your neck of the woods either. Nothing much planned this weekend – but Sunday is Mothers Day here in the US, so remember that, everyone!

Other than that, hope all of you have a great weekend and I will talk to on Monday!

Wednesday, May 3rd 2017

Me on May 3rd 2017 at 4:51 PM
Me on May 3rd 2017 at 4:51 PM

Hello everyone! So, it was Restaurant Week for the last two weeks here – and on Saturday, we went to a local fancy restaurant for it. It was very delicious. I had mozzarella cheese drizzled with olive oil and served with a basil leaf for an appetizer (weird appetizer, a whole lot of cheese, but hey, it’s a fancy place, they probably know what they are doing!), a bronzino filet with lentil entree, and a lemon mousse for dessert. It was delicious. So, other than that, nothing went on here this weekend. So, I will talk to all of you next week!

Wednesday, April 26th 2017

Me on April 26th 2016 at 5:28 PM
Me on April 26th 2016 at 5:28 PM

Happy Wednesday! I hope all of you had a great week! Nothing much is going on here, so not much to post about. My week was an average week – should be a good weekend. Hope all of you have a great weekend and I will talk to you next week!

Wednesday, April 19th 2017

Me on April 19th 2017 at 5:38 PM
Me on April 19th 2017 at 5:38 PM

Happy Wednesday! I hope all of you had a great weekend – and holidays, if you celebrate anything. I celebrated Easter by eating candy – candy is tasty!

I went to my local oncologist today and they were able to get all of the tubes for the registry – so I had like 9 or 10 tubes drawn today. He likes my numbers, which is always good. Don’t have any doctors appointments until I see him again next month, so yay! No plans here for the weekend, so not much going on, so I will just do the usual routine. I hope all of you have great weekends and I will talk to you next wednesday!

Wednesday, April 12th 2017

Me on April 12th 2017 at 10:10 PM
Me on April 12th 2017 at 10:10 PM

Hi everyone, happy Wednesday! So, not much going on here, didn’t do much this weekend – my mom baked some cookies, chocolate chip, which are delicious. Other than that, it’s Easter/Passover time – we don’t really do anything for it, but for those who do, I hope you have a great time. For me, the best part about Easter is the chocolate 😀

Anyway, talk to all of you next week!

Wednesday, April 5th 2017

Me on April 5th 2017 at 5:32 PM
Me on April 5th 2017 at 5:32 PM

Happy Wednesday! So, not much went on this weekend – went to a local town, my dad got some wine, we stopped by the cheese shop that is across the street – got a cheddar and a parmesan and both are delicious. We also got cupcakes and I got a s’mores cupcake and a chocolate dipped cannoli cupcake and they were super tasty. Other than that, not much going on here. I’ll talk to all of you next week!